GenomeConnect

by Clinical Genome Resource (ClinGen)

ID: ffd02d96-c153-448b-ad19-353badefcf3b

A patient registry engaging individuals as partners in data sharing by collecting genetic testing results and health information. Note: Data from participants in the European Union (EU), European Economic Area (EEA), and United Kingdom (UK) cannot currently be processed due to GDPR. They accept electronic (pdf, doc, jpg) or physical clinical reports but they do not process raw data files.

Availability

Worldwide
Excludes: European Union, United Kingdom, European Economic Area, EU, EEA, UK

Compensation

❤️ Donation

Entity Type

Non-Profit / Research Project

Based In

United States (US)

Compatible Sources

Clinical Report
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References

Open Data & Metadata

Persistent Identifier

https://yourselftoscience.org/resource/ffd02d96-c153-448b-ad19-353badefcf3b

Use this permanent ID for stable linking in research papers and dataset integrations.